Community Resources
Tips When Hospitalized

 

Non-Profit and Governmental Kidney Resources
 

American Kidney Fund

 800. 638.8299

helpline@akfinc.org  

American Nephrology Nurses Association

American Society for Pediatric Nephrology

 (317)-278-0854

 

Commission on Kidney Disease of Maryland 

(410) 764-4785

Executive Director: Eva Schwartz

 

Center for Medicare & Medicaid Services

(410)-786-0066

Council of Nephrology Social Workers

Davita Patient Citizens

The Voice of the Patient; A Quarterly Publication of DaVita Patient Citizens

This newsletter and website provide excellent patient education material along

with advocacy efforts on a national level.

                                                                                                                                                

 

iKidney.com

Dedicated to bringing the worldwide renal community together to improve the patient's quality of life. It has many informational articles on all aspects of living with CKD and ESRD.

 

Kidney Disease Program- Maryland

Funds ESRD Care in MD

( 410)-767-5000

Chief Carol Manning

 

Maryland Patient Advocacy Group

(410)-872-2846

Pearl Lewis

Medical Assistance - Contact the County Department of Social Services in your state. Providing Access to Care for Those Meeting Income Criteria

Medicare Rights Center

Advocates for those on Medicare              

(212)-869-3850

 

Mid-Atlantic Renal Coalition 

(804)-794-3757

Oversees Quality Improvement,

Transplant Care,

 Professional Education,

Reviews Patient Grievance

Director Nancy Armistead

MARC@nw5.esrd.net

 

Renal Support Network                       

 (818) 543-0896                                                                                                      Patient led organization providing education,

 support and advocacy.                                        info@renalnetwork.otg                         

 

UNOS

(804) 782-4800

United Network for Organ Sharing'

Oversees organ transplantation      

        

National Kidney Foundation of Maryland                                                                  (410)-494-8545

Provides Patient Education/Support/Funds Research

Director Raquel McGuire

 

National Kidney Foundation DC Chapter   

(202)-244-7900

Director Tony Englert

 

National Kidney Foundation National Office                                                     (800)-622-9010

 

National Kidney Foundation

(800)-889-9559

Office of Scientific and Public Policy          

National Institutes of Diabetes, Digestive and Kidney Disease                         (301) 594-7717

National Kidney and Urological Diseases Clearinghouse

 (301)-654-4415                                            

 Social Security                                                                                                     (800)-772-1213

Foundation for Children with Atypical HUS

 (636)-942-4425

Bill Biermann                                                   

saturnracer1@cs.com

Pearl Lewis         

(410)-872-2846

yettapearl@comcast.net

 

Polycystic Kidney Disease Foundation

(800)-PKD-CURE

 

Summer Camp for Pediatric Kidney Patients

American Kidney Fund's Pediatric Camp

Renal Support Network - an illness is too demanding when you don't have hope - Lori Hartwell
  • Helps patients find resources to manage their disease
  • Produces materials and activities that make their lives more enjoyable
  • Offers patient and family education on life enhancement and illness related issues
  • Teaches patients how to advocate for themselves with legislative partnering

RSN's inaugural National Patient Meeting

September 30-October 2, 2004 Denver, Colorado

Adam's Mark Hotel and Resort

Contact: RSN

818-543-0896

1311 N. Maryland Ave.

Glendayle, CA 91207