Community Resources
Tips When Hospitalized


Non-Profit and Governmental Kidney Resources

American Kidney Fund

 800. 638.8299  

American Nephrology Nurses Association

American Society for Pediatric Nephrology



Commission on Kidney Disease of Maryland 

(410) 764-4785

Executive Director: Eva Schwartz


Center for Medicare & Medicaid Services


Council of Nephrology Social Workers

Davita Patient Citizens

The Voice of the Patient; A Quarterly Publication of DaVita Patient Citizens

This newsletter and website provide excellent patient education material along

with advocacy efforts on a national level.


Dedicated to bringing the worldwide renal community together to improve the patient's quality of life. It has many informational articles on all aspects of living with CKD and ESRD.


Kidney Disease Program- Maryland

Funds ESRD Care in MD

( 410)-767-5000

Chief Carol Manning


Maryland Patient Advocacy Group


Pearl Lewis

Medical Assistance - Contact the County Department of Social Services in your state. Providing Access to Care for Those Meeting Income Criteria

Medicare Rights Center

Advocates for those on Medicare              



Mid-Atlantic Renal Coalition 


Oversees Quality Improvement,

Transplant Care,

 Professional Education,

Reviews Patient Grievance

Director Nancy Armistead


Renal Support Network                       

 (818) 543-0896                                                                                                      Patient led organization providing education,

 support and advocacy.                                        info@renalnetwork.otg                         



(804) 782-4800

United Network for Organ Sharing'

Oversees organ transplantation      


National Kidney Foundation of Maryland                                                                  (410)-494-8545

Provides Patient Education/Support/Funds Research

Director Raquel McGuire


National Kidney Foundation DC Chapter   


Director Tony Englert


National Kidney Foundation National Office                                                     (800)-622-9010


National Kidney Foundation


Office of Scientific and Public Policy          

National Institutes of Diabetes, Digestive and Kidney Disease                         (301) 594-7717

National Kidney and Urological Diseases Clearinghouse


 Social Security                                                                                                     (800)-772-1213

Foundation for Children with Atypical HUS


Bill Biermann                                           

Pearl Lewis         



Polycystic Kidney Disease Foundation



Summer Camp for Pediatric Kidney Patients

American Kidney Fund's Pediatric Camp

Renal Support Network - an illness is too demanding when you don't have hope - Lori Hartwell
  • Helps patients find resources to manage their disease
  • Produces materials and activities that make their lives more enjoyable
  • Offers patient and family education on life enhancement and illness related issues
  • Teaches patients how to advocate for themselves with legislative partnering

RSN's inaugural National Patient Meeting

September 30-October 2, 2004 Denver, Colorado

Adam's Mark Hotel and Resort

Contact: RSN


1311 N. Maryland Ave.

Glendayle, CA 91207